This is too cute...please join us! It is not an "event" to "go" to. It is wherever you are, whenever you plan...PAINT A PUMPKIN PURPLE FOR RETT SYNDROME AWARENESS and then post your picture for all to see on the event page. #pumpkinsforrett
What might you be able to do, give up, or practice in order to bring awareness? Would you at the very least commit to pray for our girls and for a cure? That's would be much appreciated.
Perhaps the general population does not want to hear what goes on behind the scenes...perhaps I am too weary to explain or put myself out there...perhaps the Rett mamas nod knowingly while some in the general population might shrug, "What's the big deal?" Perhaps...
Recently I was picking up a child from her after-school activity and another mom asked me, "Hey are you guys gonna go to [fill in name of interesting and worthy cause]?" My answer? "Uhhhhh..." The event was two days away, not counting the current day. It required registration and a 15 mile drive. It truly was (is), a worthy cause. Why can't I just say "Yes" and commit?
Last week we sat at the table around dinner time playing a word game. You listened patiently and we "gave you a turn" trying to help you play with your computer as your voice. You seemed uninterested-- I would be, too if I didn't have the proper equipment to play a game. The game went on and on-- Zebra. Ant. Tiger. Rat.
It's not like in the ABC Family Special when the kid walks up to the parent thoughtfully and says, "Mom, I was wondering..." And they sit down together with mom's arm around the kid's shoulder, face to face, eye to eye, heart to heart.
Halloween is upon us. We start at Savers or Goodwill and move on from there if we can't find anything. Navigating around ghouls and goblins to get to cute, fun costumes is the norm in our house.
I have a project for this month and I thought it might be fun to show you another part of my life that is very important to me.